Archive for category Support

JDRF Parent Network Meeting – 2/23/10

JDRF Parent Network Meeting
Tuesday, February 23 at 6:30pm
Wisconsin Trade Center, 8401 Greenway Boulevard, Middleton

**change of location this meeting only**

***UPDATED 2/24/10*****
We had a fantastic turnout for the Feb. 23 JDRF parent networking meeting (58 adults)!  Tracy Bekx, endocrinologist from American Family Children’s Hospital, provided invaluable information: an overview of DKA and hypoglycemia, how to detect and prevent them, along with sick day guidelines.  Many of our parent mentors were in attendance, which new “mentor program” assists the newly-diagnosed families adjust to Type 1.  Call the JDRF office if you’re interested in joining the mentor program to provide one-on-one support at a time when it’s so beneficial to our newbies.

The grief counselor for the meeting cancelled due to personal illness.  Keep in mind that your Employee Assistance Program or insurance carrier can help with fears and feelings about handling Type 1 and its complications.  And these fourth-Tuesday-of-the-month meetings relay tons of information to help each other through our daily lives with Type 1.      

Once again, thanks to all our teen sitters who stepped forward to make this meeting happen!

Thanks everyone for coming … looking forward to seeing you on March 23!

Handouts from the meeting:

Children with Type 1 Diabetes – Tracy Bekx
Diabetic Ketoacidosis – A preventable Crisis by Jan Chait
UW Health Sick Day Guidelines for Children with Type 1 Diabetes
Diabetes Resource List.doc

The recent death of a teenager from complications of type 1 diabetes has resulted in much anxiety, fear, sorrow and concern among parents in our community.  At this special meeting, a pediatric endocrinologist will review diabetic ketoacidosis (DKA) and how to recognize and treat this condition, why to check ketones, treatment for extreme low blood sugar and emergency glucagon usage, and sick day guidelines.  We will also have a HospiceCare grief counselor facilitate discussion on thoughts and feelings related to this tragedy, and to find support from others who are sharing similar experiences.  Childcare will be provided.  Please RSVP to Eileen Regan at regans4747@att.net

Bring your questions and we’ll see you soon! 

Directions to the Wisconsin Trade Center Building & JDRF meeting location:

Take the beltline to Middleton and take the Greenway Boulevard exit. Head west toward the tall office buildings and Greenway Station shopping area.  Go past Deming Way, drive under the glass overhead walkway, take the first left into the parking lot, and enter the building at the gold awning door. 

Rothschild conference room will be to the left, before you get to the glass walkway.  The childcare will be in the JP Morgan room. There’s a coat room and bathrooms right outside the conference rooms.  Be sure to sign in so we can place you on the email list for meeting notices. WTC conf rooms directions

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Janesville Parent meeting for Mercy Type 1 Diabetes Family Group

Join us Wednesday, March 3, 2010 at the Hedberg Public Library Meeting Room – Lower Level. (Right across from the snack shop.) 316 S Main St, Janesville, WI

This meeting the topics are going to be mainly for the parents. Kids are welcome in the library when they are 8 and older. If they are under 8 they need to be with someone 12 or over. There are computer games, movies, books, games to check out. Lots of fun in the Children’s Department. 

Agenda:

Community need of a type 1 group
ADA
JDRF
Kids activities-Ideas

For more information please contact Jen White 921-1663 or 563-0794

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It’s a Family Affair

Please join us – Wednesday, April 14 for It’s a Family Affair!, a practical discussion about diabetes
and the effects on the family.
All are welcome – parents, children (8 years & older), clinicians.

Learn more about effective coping skills for:

  • Living with Diabetes — the challenges facing children and families
  • Communicating effectively with spouses, children and extended family members
  • What to ask, and listen for, when speaking to physicians and healthcare providers
  • Recognizing and addressing the needs of your child’s siblings
  • Getting your teenager to be responsible about taking care of their diabetes

Joe SolowiejczykPresenter: Joe Solowiejczyk, RN, MSW, CDE – Johnson & Johnson Diabetes Institute
Location: Alliant Energy Center, Madison
Date/Time: Wednesday, April 14, 2010
6:30 p.m. – Reception
7:00 p.m. – Program
RSVP: Gena Van Kirk, Animas: 608-397-7756 or gvankirk@its.jnj.com
JDRF Western Wisconsin Chapter: 608-833-2873 or westernwi@jdrf.org

Read more, download the It’s a Family Affair! flyer.

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45th Anniversary Ford Mustang Mascot Bear

Ford celebrated the 45th Anniversary of their best-loved model, the Ford Mustang, in 2009.

To commemorate the occasion, the Ford/JDRF Team created this adorable plush bear sporting a leather jacket emblazoned with the official Mustang 45th Anniversary logo.

More than $34,000 was raised for JDRF through the sale of these bears!

Ford is excited to offer you the chance to purchase this keepsake item as another way to support JDRF.

Purchase your 45th Anniversary Ford Mustang Mascot Bear now.

Bears sell for $10 each and 100% of proceeds benefit JDRF!

On Sale Feb. 1- March 31

Ford Motor Company has supported JDRF for more than 20 years, ranking as JDRF’s #1 corporate sponsor for the past eight years. Ford has contributed over $30 million since the inception of the employee-driven team known as the Ford Global Walk Team.

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Mentor Training

Do You Remember?!?!?! 

The Shock?  The Confusion?
The Sadness?  The Exhaustion?
How you felt when you or your child was first diagnosed with diabetes? 

Would you like to help others going through the same thing? 

BECOME A JDRF MENTOR!

JDRF’s Mentor Program is about sharing, helping, listening, and new friendships with people who understand the ever-changing demands of living with type 1 diabetes.  As a mentor, you would be responsible for contacting a newly diagnosed family or adult and sharing your personal experience, answering non-medical questions, and most importantly, lending valuable, specialized support when it’s needed most.

Please join us for one of our training sessions led by Jeanne Grist, Mentor Chair and Amy Eager, Outreach Chair.

Madison:
Tuesday, November 3 – 7:00 p.m.-8:30 p.m.
Thursday, November 5 – 11:45 a.m.-1:15 p.m.
Click here for additional information and interest form

JDRF Western Wisconsin Chapter Office
7818 Big Sky Drive, 2nd Floor Conference Room, Madison

La Crosse area:
Wednesday, November 11 – 11:45 a.m.-1:15 p.m.
Wednesday, November 11 – 6:30 p.m.-8:00 p.m.
Click here for additional information and interest form

Gundersen Lutheran – Onalaska Clinic
3111 Gundersen Drive, Conference Room 1K, Onalaska

For more information, contact Jeanne Grist, Mentor Chair at  jeannegrist95@gmail.com or Amy Eager, Outreach Chair at  acemusic@eishome.com, or call the JDRF Western Wisconsin Chapter at 608-833-2873 .

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Mark your calendar for Tuesday, July 28, for our networking meeting.

Our guest speaker will be Beth Vanden Langenberg, Pediatric Nurse Practitioner, American Family Children’s Hospital. She’ll cover back to school issues, Type 1 kids’ rights, accommodations, and recommended documents. She plans on bringing blank school orders again and working with families to fill them out, as she did last year. Also, Beth possesses a wealth of knowledge and can answer our many questions.

Hope to see a large turnout … See you soon!

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Design your own JDRF Funny Car contest

All children with type 1 diabetes are encouraged to submit a completed entry for the Ford Design Your Own Funny Car Contest. The Western Wisconsin chapter will receive a $1,000 donation if ten submissions are received from our area. This is also a great opportunity for fundraising for your Walk to Cure Diabetes family team.

More information:

JDRF Funny Car Design Contest

JDRF Funny Car Design Contest

Ford Customer Service Division and NHRA driver Bob Tasca II are offering one lucky JDRF child the creative chance of a lifetime—to design his or her own Motorcraft/Quick Lane/FORD Shelby Mustang NITRO funny car to be used in an actual race!

Starting June 1 through June 30, 2009, JDRF kids (with juvenile diabetes) can submit their own Funny Car design using the attached two documents (race car body and hood). All eligible design entries must be mailed to Ford, postmarked by Tuesday, June 30, 2009. (Please note that original entries will not be returned.)

All entries will be submitted into the Design Your Own JDRF Funny Car online design contest found at www.jdrf.org/ford. Family, friends and all visitors will be encouraged to make

donations in support of their favorite design. The top five designs receiving the highest bid totals will be provided to Ford to select the final winner!

Download the 2009 Funny Car Contest Information

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Spring issue of Legacy magazine is now available

The spring issue of Legacy, JDRF’s planned giving magazine, is scheduled to mail to donors this week. You can get a copy now.  It is a celebrity packed issue with stories on Luther Vandross and Mary Tyler Moore.

R&B Singer: Luther Vandross

R&B Singer: Luther Vandross

In life, Luther Vandross gave millions of people joy with his songs. In death, he is helping JDRF accelerate research for a cure for the millions of people worldwide with type 1 diabetes.

JDRF recently  received a generous gift from Vandross’ estate. The Grammy-winning R&B icon, who died in 2005 at the age of 54, had a family history of diabetes, and he also suffered from the devastating disease.

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