Archive for category Support
8/24/10 – Network Meeting notes
Posted by Western Wisconsin in Outreach, Support on August 25, 2010
Welcome to Mary (Molly, 5) and Jerry (Alexis, 4)! And yes, things do get better, with the first 6 months being the hardest. Feel free to ask us questions, discuss your situations and suggest topics for future meetings. Together we learn more and come up to speed more quickly.
Rick Andrews, from Abbott, discussed their Freestyle meters and their newest test strip which rolled out on 7/15/10. The strip requires only .1 micrometer of blood, (the least in the industry) and can be reused within 60 seconds – less errors and wasted test strips. Their Freestyle lancet is less painful and can be used on the palm for the same readings as the finger tips. Their Promise Program supplements the co-pay difference for strips and assigns diabetic educators in case your primary ones are not available. Rick always tells it like it is, and delivers his information with a good sense of humor!
Thanks again to our great sitters: Paige, Kerry, Dana and Kara! Your presence is more valuable than babysitting, as the younger kids look up to you as their role models.
Jamie Marvin, from Omnipod will be speaker at the Sept. 28 meeting, at a new meeting place (details later).
Take care, until we meet again,
Eileen
Carb Counting with Lenny’ Mobile App NOW LIVE!!
Posted by Western Wisconsin in Support on August 23, 2010
Medtronic Diabetes recently announced the launch of the first (of many!) Mobile Application : ‘Carb Counting with Lenny’ to teach children carb counting in a fun and effective way.
The App is free to download from the iTunes App Store.
More info at: www.medtronicdiabetes.com/lenny-carb-app.
Abbott will be at our Aug JDRF Networking Group Meeting
Posted by Western Wisconsin in Support, Western Wisconsin JDRF on August 18, 2010
Tuesday, August 24 at 6:30pm
JDRF Conference Room, 7818 Big Sky Drive, 2nd Floor Conference Room, Madison
Rick Andrews from Abbott will present on Freestyle meters, their brand new test strip, free meter covers, their new Promise Program with assigned diabetic educators on call, etc.
Rick is always a fun and informative speaker, so we hope you can make the meeting. Babysitters will be provided. Please RSVP to Eileen Regan at regans4747@att.net for planning purposes.
Please note this is the last meeting at the JDRF office – location for September and future meetings will be announced shortly.
July Network Group Meeting Notes
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on August 3, 2010
Beth VandenLangenberg (Pediatric Nurse Practitioner at UW Hospital) provided information, articles and forms on the medical side of back-to-school issues, as well as answered many questions. She distributed the newly-revised “Resource Guide for Wisconsin Schools and Families” and pointed out the Quick Tips section. Here’s the link for the electronic version: http://www.dhs.wisconsin.gov/health/diabetes/srg.HTM
Laurie McLeod (Middleton networking group leader) reviewed 504 plans and the need to have plans in place for various accommodations, before they happen (ACT tests, leaving class to test, class trips, bus rides, etc.). Good news: the Madison school district will now be initiating 504 plans for children with Type 1, where in the past this has sometimes been a struggle for parents. If you’d like a copy of Laurie’s comprehensive 504 plan, please email her at lemcleod1@yahoo.com as she will generously share her copy or answer any of your questions. Remember: schools are obligated to follow through with 504 plans if they accepted federal funding or risk losing that funding.
A School Advisory Toolkit is available at: http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=7A645925-1279-CFD5-A71730D087DFCE8C
Sample 504 plans are available at JDRF, American Diabetes, and Children with Diabetes websites:
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=9F069EBB-2A5E-7B6E-15A88A764C176D4F and
http://www.childrenwithdiabetes.com/504/
Beth and Laurie did a super job of presenting these school-related issues, and we thank them from the bottom of our hearts! The conference room was full, which attests to the continual interest in these important topics.
Thanks to our loyal sitters for assisting once again: Sylvia, Kerry, Dana and Kara!
Take time to relax and enjoy the remainder of the summer! And take care, until we meet again, (August 24th)
Eileen
Chronic Kidney Disease: You Don’t Know the Half of It!
Posted by Western Wisconsin in Advocacy & Research, Outreach, Support, Western Wisconsin JDRF on July 14, 2010
Chronic Kidney Disease DVD to Premiere at Free Community Events across State (Madison – July 20, Milwaukee – July 27, La Crosse – August 17)
Educational DVD Features Local People Sharing Their Story of Diabetes, Hypertension and Chronic Kidney Disease
MADISON, WI (July 1, 2010) – The Wisconsin Lions Foundation, in partnership with the Wisconsin Diabetes Prevention and Control Program and National Kidney Foundation of Wisconsin, will hold a community education program in Madison on July 20 at the Sheraton Madison Hotel, 706 John Nolen Drive. Registration begins at 5:30 p.m. and the event starts at 6:00 p.m. People who have diabetes, high blood pressure, and/or chronic kidney disease, as well as their family members and people interested in learning more about diabetes, high blood pressure or chronic kidney disease are encouraged to attend.
Event attendees will see a premiere showing of the new educational DVD “The Links to Chronic Kidney Disease: Diabetes, High Blood Pressure, and Family History” and receive a free copy to take home. They will also hear from diabetes care experts about diabetes, high blood pressure and chronic kidney disease, meet and hear from local “stars” from the DVD who tell their diabetes story, be able to have their blood pressure checked, and enjoy exhibits and healthy light snacks/refreshments.
Diabetes is the leading cause of chronic kidney disease. “Controlling your high blood pressure and/or diabetes can help prevent and or delay the progression of chronic kidney disease,” says Leah Ludlum, RN, BSN, CDE, director of the Wisconsin Diabetes Prevention and Control Program.
For more information, contact Ludlum at (608) 261-9422 or Leah.Ludlum @wisconsin.gov.
Bowling event for the kids attending diabetes camp this summer!
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on July 12, 2010
Who: Kids attending diabetes camp + anyone else who would like to join us!
What: Bowling!
Where: Spartan Bowl, 4711 Farwell, McFarland, WI 53558
When: Sunday July 18th 2010 2:00 pm – whenever!
Why: To get to know each other a little better so there will be more familiar faces at camp!
Cost: Bowling $3.09 per game Shoe Rental $1.89 per pair + tax (And I do have some coupons so we should be able to save some money.)
Please RSVP to Robin Koppenhaver so we know who to expect! 608.838.1220
Keys to Independence booklet available online
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on June 29, 2010
Great new booklet is available to help with the transition from pediatric to adult diabetes care. Click here to view a pdf copy: Keys to Independence-Diabetes
Authors Craig Becker, MSSW, Darci Pfeil, CPNP, Mary Marcus, MS, RD, CSP, and Beth Van Den Langenberg, CPNP in collaboration with the University of Wisconsin Pediatric and Adult Diabetes Teams.
Acknowledgements A special thanks to Cheryl, Ashley and Natalie Eklund.
Copyright © 2007
For copies of this booklet contact: (608) 263-9059
This publication was supported in part by funding from the U.S. Health Resources and Services Administration, Maternal and Child Health Bureau, through grant numbers T72 MC 00008 and D70 MC 4467, the University of Wisconsin Pediatric Pulmonary Center and the Wisconsin CYSHCN Program’s Wisconsin Integrated Systems for Communities Initiative.
6/22/10 Network Group Meeting Notes
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on June 24, 2010
Welcome to Lynne, Joanne (Henry, 5), and Lynn and Lorraine! I’m so glad you found the networking group and look forward to seeing you at future meetings, as we all share information to help each other.
Gena Van Kirk, RD, CDE and Territory Manager for Animas, was our guest speaker. Gena discussed the waterproof Ping pump and meter (pings information back and forth), with the pump being available in 5 colors. Animas is working toward supplying a line of pumps to fit different patient needs. Their artificial pancreas project is 4-5 years out for the first generation, prior to FDA approval. View their website: http://www.animas.com/ which contains lots of information along with a reminder to pay attention to all pump warnings, as well as to disconnect PRIOR to rewinding, loading or priming. Feel free to contact Gena at 608-397-7756 or gvankirk@its.jnj.com if you have questions or concerns.
I want to thank you all for the many questions at this meeting. That’s how we all learn more, to keep the discussion of new information flowing. What one doesn’t think of, another will, or we can build on the last question asked. And the speakers do enjoy and appreciate the questions, so they don’t have to just present what they feel may be “dry” material.
Thanks once again to our faithful sitters, who make it possible for more parents to attend!
Please note the annual JDRF meeting tonight is located at the Edgewood west campus, 1255 Deming Way, not on Monroe Street.
Please place July 27 on your calendar for our next meeting, with back to school issues, forms and 504 plans presented by Beth VandenLangenberg (UW Hospital Pediatric Nurse Practitioner) and Laurie McLeod (Middleton network group leader).
Take care, until we meet again, Eileen
Seeking new meeting place for our JDRF Networking Group
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on May 4, 2010
We’ve outgrown our meeting place in the JDRF office building, and am wondering if anyone has any suggestions for a new spot. Many of the larger companies have secured buildings, and they have issues with evening meetings. This may still be a possibility, though, if you know of one that would accommodate us.
Ideally, a building that is centrally located, off the betline and more toward center of town. A facility that has two separate spaces, one for the meeting and one for the babysitting, would be ideal as well. Possibilities might be a church, school, community center, clinic, etc.
Please send all your ideas, and I’ll check into suggestions. If you have connections, all the better.
Thanks so much for your input in this regard.
Eileen Regan
JDRF Network Meeting ~ Madison
Posted by Western Wisconsin in Outreach, Support, Western Wisconsin JDRF on March 12, 2010
Tuesday, March 23 at 6:30pm
JDRF Conference Room, 7818 Big Sky Drive, 2nd Floor Conference Room, Madison
With March being national nutrition month, come and learn about the glycemic index and your health. Choosing some foods over others results in more level blood glucose numbers versus spiking numbers. The end result is less insulin required and more energy for your career, sports, family, etc. Erin (Tartar) Seffrood, Pediatric Clinical Nutritionist from American Family Children’s Hospital will be our presenter.
Childcare will be provided. Please RSVP to Eileen Regan at regans4747@att.net