Archive for category Advocacy & Research
Chronic Kidney Disease: You Don’t Know the Half of It!
Posted by Western Wisconsin in Advocacy & Research, Outreach, Support, Western Wisconsin JDRF on July 14, 2010
Chronic Kidney Disease DVD to Premiere at Free Community Events across State (Madison – July 20, Milwaukee – July 27, La Crosse – August 17)
Educational DVD Features Local People Sharing Their Story of Diabetes, Hypertension and Chronic Kidney Disease
MADISON, WI (July 1, 2010) – The Wisconsin Lions Foundation, in partnership with the Wisconsin Diabetes Prevention and Control Program and National Kidney Foundation of Wisconsin, will hold a community education program in Madison on July 20 at the Sheraton Madison Hotel, 706 John Nolen Drive. Registration begins at 5:30 p.m. and the event starts at 6:00 p.m. People who have diabetes, high blood pressure, and/or chronic kidney disease, as well as their family members and people interested in learning more about diabetes, high blood pressure or chronic kidney disease are encouraged to attend.
Event attendees will see a premiere showing of the new educational DVD “The Links to Chronic Kidney Disease: Diabetes, High Blood Pressure, and Family History” and receive a free copy to take home. They will also hear from diabetes care experts about diabetes, high blood pressure and chronic kidney disease, meet and hear from local “stars” from the DVD who tell their diabetes story, be able to have their blood pressure checked, and enjoy exhibits and healthy light snacks/refreshments.
Diabetes is the leading cause of chronic kidney disease. “Controlling your high blood pressure and/or diabetes can help prevent and or delay the progression of chronic kidney disease,” says Leah Ludlum, RN, BSN, CDE, director of the Wisconsin Diabetes Prevention and Control Program.
For more information, contact Ludlum at (608) 261-9422 or Leah.Ludlum @wisconsin.gov.
Apply to JDRF’s Children’s Congress 2011
Posted by Western Wisconsin in Advocacy & Research, Children's Congress, JDRF on July 13, 2010
JDRF is now accepting applications for its 2011 Children’s Congress, which will be held in Washington, D.C., June 20-22.
To complete the application online, or to download a hardcopy to submit through the mail, please visit http://bit.ly/CC11App.
Held in odd-numbered years since its inception in 1999, Children’s Congress brings more than 150 children with type 1 diabetes and their families to Washington, D.C. Children’s Congress participants represent all 50 states and the District of Columbia. They meet with Members of Congress and other key federal decision-makers to help educate them about the critical need for federal funding for type 1 diabetes research. Children’s Congress participants represent all 50 states and the District of Columbia.
Applicants must be between the ages of 4 and 17 and have type 1 diabetes. All applications must be received by JDRF by 5pm EDT on Monday, October 4, 2010. You can view a list of frequently asked questions regarding the application process by clicking here.
Children’s Congress inspires lawmakers to remember the children who live with type 1 diabetes when making decisions about medical research and voting on other important federal issues relating to diabetes. Our children’s stories, told in their own words, are more powerful than almost any other type of legislator education.
To learn more about Children’s Congress 2011 and to complete the application process, visit the Children’s Congress website at http://cc.jdrf.org or email JDRF at childrenscongress@jdrf.org.
Thanks for all you!
JDRF’s Children’s Congress 2011
2011 Children’s Congress Application
Posted by Western Wisconsin in Advocacy & Research, Western Wisconsin JDRF on July 2, 2010
The 2011 Children’s Congress will be held Monday, June 20 to Wednesday, June 22 in Washington, DC. The application for Children’s Congress will be available on Tuesday, June 22 to advocates who joined the JDRF Diabetxt Mobile Advocacy network by requesting to receive an early release of the application via text message. If you would like to receive the application early, please text ‘CC11’ to 37420 from your mobile phone. The wider JDRF community will be given access to the application in early July. Additional information about Children’s Congress is available at http://cc.jdrf.org
Legacy Newsletter June 2010
Posted by Western Wisconsin in Advocacy & Research, JDRF, Planned Giving, Western Wisconsin JDRF on June 22, 2010
Looking Back: 40 Years of Driving Science Toward a Cure
What We’ve Accomplished–and Where We Are Headed
This year marks the 40th anniversary of JDRF’s founding. While we fully acknowledge that a celebration is not in order—after all, we have not yet accomplished our mission of finding a cure for type 1 diabetes—we do believe it is entirely appropriate to acknowledge the research progress JDRF has made toward better treatments and a cure, and the people who have enabled us to come so far.
This issue of Legacy includes stories that examine where we’ve been over the past four decades and where we’re going. You’ll see a timeline of our greatest successes, and you’ll find information about our latest work. View the full issue
Representative Ron Kind Meets with Children for JDRF’s Promise to Remember Me Campaign
Posted by Western Wisconsin in Advocacy & Research, Western Wisconsin JDRF on April 2, 2010
La Crosse, WI – March 31, 2010 –Representative Ron Kind recently met with three children from his home district who have juvenile (type 1) diabetes, as part of the Juvenile Diabetes Research Foundation’s sixth national “Promise to Remember Me Campaign.”
The children urged their legislator to “promise to remember” them and others affected by the devastating disease when making federal funding decisions regarding medical research.
Representative Kind visited with Kristin Everett & Doug Rhoten and their children – Katie and Spencer Rhoten, Mark Miller and his children; Mariah, Nolan and Emma, Juli Rose and daughter Sydni, Dave Waletzki and son Kyle, Jennifer Voss and her children Sophie and Max
Sharon McIlquham and her daughter Rachael.
Representative Tammy Baldwin Meets with Children for JDRF’s Promise to Remember Me Campaign
Posted by Western Wisconsin in Advocacy & Research on March 12, 2010
Madison, WI – March 5, 2010 –Representative Tammy Baldwin recently met with three children from her home district who have juvenile (type 1) diabetes, as part of the Juvenile Diabetes Research Foundation’s sixth national “Promise to Remember Me Campaign.” The children urged their legislator to “promise to remember” them and others affected by the devastating disease when making federal funding decisions regarding medical research. Representative Baldwin visited with Stella Wickman (age 4, Madison), Katya Boehnen (age 12, Middleton) and Aaron Liebe (age 11, Waunakee).
JDRF and BD Collaborate to Improve Insulin Pump Delivery
Posted by Western Wisconsin in Advocacy & Research, News on January 20, 2010
From the national JDRF:
New York, NY and Franklin Lakes, NJ (January 19, 2010) – The Juvenile Diabetes Research Foundation (JDRF) and BD (Becton, Dickinson and Company) (NYSE:BDX) announced today an innovative program aimed at improving the treatment of type 1 diabetes by developing novel insulin delivery products to enhance the use of insulin pumps.
Through the program, JDRF will support BD’s research and development of new products that deliver insulin from a pump to a patient in either an infusion set or patch-pump configuration. Research indicates that there are significant opportunities to enhance pump therapy by improving convenience as well as minimizing pain, kinking, occlusions and site infections. An additional goal of the program is improving the speed at which insulin works. These enhancements are intended to improve how people with diabetes control their insulin therapy and have a positive impact on their overall level of glycemic control.
Read the full story.
The national JDRF has an entire site with more information about the artificial pancreas project.
Submit your comments to the NIH
Posted by Western Wisconsin in Advocacy & Research, JDRF, News, Outreach on May 24, 2009
A message from JDRF CEO, Alan Lewis:
JDRF is engaged in the process of generating comments to the NIH in support of their ethical guidelines for the conduct of embryonic stem cell research. The deadline to submit these comments is coming up quickly, on May 26.
It is imperative that the NIH receive as many supportive comments as possible. JDRF has prepared comments that our advocates can review and submit. These comments support the NIH’s approach and make recommendations for how we can make even more stem cell lines available for research.
We need you to spread the word to those connected to your chapter, who may not be in our advocacy database, to participate in this critical activity this week. Please pass this message along through as many communications channels as you can.
People can take action in two ways:
- Visit our action alert page, review our prepared comments, and access the NIH’s form.
- Take action through our new text messaging channel, the Diabetxt Network. Use the available tools on this site to place this widget on your social networking page(s) and provide the necessary information. You can take action, sign-up for our mobile network, and tell your friends all at once!
While we will submit comments from JDRF as an organization, it is critical that JDRF families engage in the process as well. We need to show the NIH that patients and families are appreciative of efforts to expand stem cell research and accelerate our path to a cure!